The Down Syndrome Family Network advocates for the value, acceptance and inclusion of people with Down syndrome — empowering families across Trinidad and Tobago with the resources, support and community they deserve.
We believe every person with Down syndrome is capable of growth, learning and achievement. Our starting point is always potential, never limitation.
We work with schools, employers and communities to break barriers, change perceptions and create spaces where every individual is welcomed and valued.
We equip families and caregivers with the tools, information and peer network they need to champion the individuals they love — at every stage of life.
Founded in 2012 by Glen Niles — a father with a son with Down syndrome — DSFN has grown into Trinidad and Tobago's leading voice for inclusion and family support.
We are a registered non-governmental organisation headquartered in Port of Spain, committed to changing the narrative around Down syndrome in Trinidad and Tobago. Our network connects families, caregivers, healthcare professionals and allies.
Our work spans awareness campaigns, annual conferences, community workshops and direct family support — all grounded in current research and international best practices.
From the moment of diagnosis through adulthood, DSFN is there with information, guidance and community.
Expert guidance on developmental and behavioural challenges in children with Down syndrome, connecting families with qualified professionals in Trinidad & Tobago.
Up-to-date resources including medical guidelines, educational research and fact sheets — translated into practical knowledge for everyday families.
We help families locate therapists, schools, government services and community resources suited to the needs of their child or adult family member.
Structured plans to help young adults with Down syndrome transition into health care, community life and independence — building a future beyond school.
The annual Buddy Walk, Lots of Socks, and World Down Syndrome Day events raise public understanding and celebrate the abilities of every individual.
Quarterly workshops and peer community groups where parents and caregivers share experiences, receive support and build lasting friendships.
Our annual calendar is full of moments that raise awareness, build community and create joy.
Every dollar funds workshops, family consultations, awareness campaigns and resources that directly support individuals with Down syndrome and their families. No amount is too small — and every contribution is deeply appreciated.
Give your time, skills and passion to one of the most meaningful causes in our community.
Whether you're a healthcare professional, a student, a corporate team or simply someone who cares — there is a role for you at DSFN. Our volunteers are the heartbeat of everything we do.
Curated, evidence-based information to support you at every stage.
Core medical and developmental facts about Down syndrome, written for families and caregivers.
Download ↗International guidelines for the medical care of adults with Down syndrome, updated 2022.
Download ↗International best practices for educating learners with Down syndrome in inclusive school settings (2021).
Download ↗Find a registered Speech Therapist or Audiologist in Trinidad & Tobago via SLAATT.
Find a Therapist ↗Directory of registered occupational therapists available in Trinidad & Tobago.
Find an OT ↗The UN Convention on the Rights of Persons with Disabilities — know your rights and your child's rights.
Read More ↗Have a question about Down syndrome, need support, or want to get involved? We'd love to hear from you.